Monday, November 24, 2008

Max's hosp appointment

Today Max had his checkup by the neuromusculor team at randwick childrens hospital,
I woke up at 5.30am and left home just after 6 and we got to the hosp outpatients dept with 3 minutes to spare.for his 8am appointment.
we went thru everything during my pregnancy, and the chorid plexis cyst he had while in my tummy through to all his milestones he has reached and the ones he should have reached, and they said that there doesnt seem to be any sign of the tongue tremors that the other Paed mentioned, ( i forget the name they called it. tongue ficulations ? something like that) and this was a symptom of cerebral palsy, ( cp is when the brains messages cant get thru. so if the brain tells the hands to pick something up the hands dont get the full message and they dont properly pick the object up)
his reflex's in his lower body were brisk ( not 100% sure what that meant) but they want to keep an eye on it. his upper are all normal.
he definatly has developmental delays, 1 thing they checked, he was only at the stage of an 8wk old but i cant remember what that bit was?! we went thru so much , it was alot to take in all at once.
Max has to have an MRI done aswell as another ultrasound of his brain to check the cyst again, and we have to go back up to randwick hosp in march for a follow up, and in the meantime referred us to a paediatrician down here to see every 3mths, they suggested physio , which we have already been doing, and also he suggested a speech therapist, which we have already seen once and are seeing again in 3wks time, they were impressed at how on top of it all that i am with things.( yay to me LOL)
the Dr also said Max was his 1st patient for the day and he was the best baby he had seen all month and was a great way to start his day, everyone always comments on how smiley and contented he always is, even when they drew blood from his little arm he didnt even cry!! he just looked a bit stunned.
he had to put a wee bag on to collect a urine specimen, and it was a bag with sticky tape all around the edges, and when they took it off him he laughed his head off, it was stuck to his walnut and everything i hate having band aids ripped off. guess its different with no hair under the sticky part, LOL.
they also mentioned that cp symptoms can come and go in the 1st 12 mths but they dont think he has it, but they will keep an eye on him anyway.
if i think of anything else i will come back and add it later.
im going to bed..........g'nite.

1 comment:

Steph said...

That all sounds very positive babe!! Yay for you for being so proactive :)